Medical Marijuana Fight for Scotch Plains Toddler Bolstered by Legislators

Brian and Meghan Wilson had hoped to try a strain of marijuana as a treatment for their daughter's seizures, but state restrictions have held them back.

SCOTCH PLAINS, NJ -- Residents of this New Jersey town Brian and Meghan Wilson have made headlines this week for their fight to enroll their two-year-old daughter Vivian in the state's medical marijuana program.

Vivian has Dravet syndrome, a rare form of epilepsy that causes frequent and violent seizures, according to a report in The Star-Ledger. Her parents had hoped to enroll Vivian so they could try a strain of pot that's seen some success in Colorado and California eliminating seizures in children. But the Wilsons were met with obstacles, including satisfying the requirement that a psychiatrist sign off on Vivian's treatment and a state restriction against edible marijuana products.

The Wilsons have been writing lawmakers for help with their plight. Two Union County lawmakers they approached came out Thursday in support. State Assemblywoman Linda Stender (D) and State Senator Nicholas Scutari (D), announced the draft of their bill that would make it easier for children to qualify and benefit from the program.

When Gov. Chris Christie was asked about the Wilson's situation earlier this week during a press conference in Lavallette, he responded that he was "very concerned, if we go down this slope of allowing minors to use this, where it ends. So I'll have the health commissioner look at it, report back to me, but I don't want to mislead people either, I'm not inclined to allow them to have it."

Heidi Dietrich May 26, 2013 at 08:14 PM
I'm epileptic and believe me, if I could get a prescription for medical marijuana, I would. The headaches I get are so bad, sometimes I get afraid that I'm going to die. It's like I have a mack truck parked on my skull. This poor child probably screams in pain. I'm going to email Chris Christie.
Michael May 26, 2013 at 09:53 PM
Extremely well said and ON POINT! Thank you for standing up for a family that needs a treatment that could save this child's life. Toxic drugs, that stop brain functioning is NOT what this child needs, Medical Marijuana for this disease was broadcasted on 60 minutes to show patients that juiced pot plants had 90% or more of the seizures stop! A disease that can cause over 200 seizures a day is absolutely horrible for a 2 year old. Let's ALL step up to help the Wilson's. If this my child, I would NOT give a crap what Christie says or wants, I would take a bullet to get the help my child would need. WHAT parent would not? THIS IS A 2 YEAR OLD that needs real medical intervention. If pot would stop the 200 plus seizures adau, who the hell is Christie to stonewall this???????
Michael May 26, 2013 at 09:58 PM
WELL SAID Stacy. If more people like you would continue to post against Christie's actions, perhaps we could get the help for the Wilson's precious child. This is when we all need to look at it "takes a village to raise a child". This issue is going to take a village to get her the help she needs and stand up for her and her parents against Christie's stoneage "reefer madness" believe in pot. THIS IS MEDICINE>get it Governor? This is a 2 year old child, suffering from a disease that can cause over 200 seizures a day, be thankful this is NOT your child, BUT NOT DO SOMETHING for the Wilson's to give this child a chance. DO you have any compassion for those that have NO VOICE?????
Michael May 26, 2013 at 10:03 PM
Heidi, you are wonderful. Please follow up. Now let me help you. Go to Medical MarijuanaDoctors.com. Ask to speak to Jade. Ask about Dr. S in Morris County. He will help you get a MM card if you qualify and I think you may. I wish I could reach out to you to help. I promise, if you follow what I said, YOU will get the help you need.
Margaret Groeneveld May 27, 2013 at 01:48 AM
Seizures are not pretty. They can devastate a family and even worse for the person suffering from them. They are stared at and ridiculed which makes it eveen worse. When there is a treatment available and it won't hurt them then how can we justify withholding that treatment.
Margaret Groeneveld May 27, 2013 at 01:49 AM
Seizures are not pretty. They can devastate a family and even worse for the person suffering from them. They are stared at and ridiculed which makes it eveen worse. When there is a treatment available and it won't hurt them then how can we justify withholding that treatment
kat May 27, 2013 at 02:02 AM
There is a new form of the drug coming out in a sublingual spray that will have the same effects if not more potent then smoking/edible. This will be a prescription based and will hopefully take over the 'medical marjuana' program.
Grem May 27, 2013 at 02:06 AM
These are self serving adult comments whom have their own agenda. Gov Christie was absolutely correct in his comments. This is a two year old! There is no advocation yet of marijuana in the Dravets community and there is evidence that ingested marijuana has much greater affect then smoked. A two year old's heart and lungs are still so small and developing...maybe relieve seizures, but potentially deadly to such small organs. MUCH more research would be needed before a parent, let alone a public figure, should think it advisable.
Dennis May 27, 2013 at 02:39 AM
Peter w. Tantillo May 27, 2013 at 03:40 AM
Are there other types of medication that will help this child? If so they should be explored first. If marijuana is the best type of drug for her condition then usr it and the hell with Gov. Christie. It's not his child that is going thru this nor is he the parent of a child who has this affliction.
the warrior goddess May 27, 2013 at 06:04 AM
Yes. These self-serving adults are certainly following their own agenda- to help their child. Sorry, do you think that this child should be forced to suffer painful seizures until her brain is damaged? Perhaps she should just take the toxic drugs that the doctors prescribe- far worse for a little body than marijuana. What does Christie know about this particular condition and its treatment? Nothing, that's what.
the warrior goddess May 27, 2013 at 06:06 AM
Medications like those that are created in labs and then sold through the blood suckers of Big Pharma? Those medications? Do you watch any television at all? Every single hour on the hour is an ad for a lawsuit- based on the med that was the "darling" of the medical world last month and is now its whipping boy. You would prefer that the kid be experimented on with a variety of harmful chemicals, many of which will have zero effect on her seizures?
Michael May 27, 2013 at 12:04 PM
No one HERE is a self-serving adult. WE are CONCERNED adults that a 2 year old is suffering when there is hope other than extremely dangerous toxic drugs that will poison the brain and liver as well as destroy the tooth buds. ANY one taking Big Pharms anti-seizure meds have serious side effects that can be permanent. AND as the brain developes a tolerance in self-defense, they up the dose or combine it with other medications and this snow-balls. This is a VERY serious disease and gets progessively worse, as in death. Given that alternative, how much time should they wait, 2 years, 5 years, 7 years until FDA approval? If this was your child, and the next major seizure could stop the heart, what would YOU do??
Michael May 27, 2013 at 12:26 PM
@the warrior goddess. Excellent comment. Big Pharm is about making money, not helping the medical community. Most anti-seizure medications do not work on this disease because of the multi-complexity of how the brain is hard wired wrong. 60 minutes interviewed EXPERT doctors that said this. THAT is why they showcased the use of medical marijuana and the HUGE difference it made in each person. One young women had over 200 seizures aday and now has NONE! She is presently in college and is excited about a real job and having a real life. If she could have gotten this as a child, think of the life she could have had! This is not about supporting ANY recreational use of pot, this is about medical facts. I for one, could not sit back and wait if this was my child. AND if it was, I dare any jury to put me in jail for wanting ONLY the best for my child. THIS is about EGO for Christie, he can't admit he could be wrong and not jaded by his "reefer madness" mentality.
Lori May 27, 2013 at 01:12 PM
I wish there were other options for them. I'm a marijuana hater, seeing 1st-hand the effects it's had on practically my entire family. Common sense seems to run from the presence of the drug. Keep searching for any other means PLEASE.
Anna-Maria May 27, 2013 at 01:13 PM
Up until 70 years ago treatment using cannibus/cannibus oil was legal. It was used as far back as 3000 years ago to treat medical issues. It wasn't until other drug companies fought to eliminate it from competing in their profits was it declared an illegal substance for medicinal use. Come on AMA, cannibus oil or smoking of Marijuana helps in a vast amount of areas, why not let this child get relief? I just recorded a very informative show on this subject from the Wellness channel, Marijuana, Miracle Cure & Marijuana Miracle Cure 2- Wired for Weed. I'm sure you can find it on line or watch out for it again on television-it's very informative even for those who don't understand medical jargon. It speaks for itself-watch it all of you who are against it's use. Especially you Mr. Christie! I can't believe we aren't able to take advantage of it's medical use. I can't believe this child has to suffer seizures on a daily basis when there is a product to ending her torture...it is torture to go thru seizures! This has to change, marijuana should definitely be used to treat a wide range of illnesses, so many-including maybe you Mr Christie-at some time in your life-may need it's medicinal use. Wake up!
John Dumas May 27, 2013 at 01:24 PM
If a much more powerful and addictive drug was indicated as useful in this case, by the pharma companies the child would already be on it!
kathy May 27, 2013 at 02:11 PM
Dear Kat, My husband makes the sublingual spray and our moms(80 and 83 yrs old) use it for arthritus and neuropathy. I have Crohns diease and use it for pain. My husband has degeterive bone disease and sprays it on morning and night. We are legal with approved doctors cards. Wish california would just legalized it.
John Dumas May 27, 2013 at 02:31 PM
While the child suffers?
the warrior goddess May 28, 2013 at 01:02 AM
So because YOUR family has addictive tendencies (which are not present in every person at the same levels by the way) you would prefer that this child be treated with ineffective and dangerous chemicals dreamed up in a lab with the sole purpose of making big money? How very charitable of you. This is not about you and your family. This is about this OTHER family and what is best for their child. Marijuana does not cause common sense to run, it may heighten the lack of it to begin with.
Lori May 28, 2013 at 11:44 AM
Yes, if it was my child I would keep searching. I'm not big on rX drugs either. Nowadays most doctors are quicker to write a rX than to find out what the real issue is and deal with it. I've gone without pain meds because they leave me unable to live a normal productive life. I've had numerous rX written for me that I have never picked up with just a small $3-10 co-pay. It's hard to suffer yourself or to see someone else suffer, but sometimes it has to be done as you pray and seek out the best options. Maybe this is their best option, I don't know that nor am I saying so for them. I'm just saying if it was my child I don't think I could go there even as a last resort. I hope they can find something else so their child does not have to suffer any longer. I really hate to see, especially, children suffer. I think it's great that they are fighting for her to get help. I'm just not convinced med mari is the way....that's all. If there is another way I really hope it is revealed to them!!!
Lori May 28, 2013 at 11:48 AM
@the warrior goddess I've done extensive research on the effects of smoking marijuana. Its a narcotic, whether someone has addictive tendencies or not, anyone using can become addicted, nobody is immune from that. I've seen the lack of common sense in several people, not just my family members who chose to use it. I used to live in Oregon, need I say anymore???
Michael May 28, 2013 at 02:10 PM
Lori, I'm sorry you have had such bad experiences with MM. I have had at least 3 dozen with alcohol abuse and have known families where their kids were killed in high speed driving. Should be go back to prohibition because some people are just irresponsible when millions are not??? The point is, their pediatric Neurologist who is a SPECIALIST, thinks this could work and is well worth the chance. Shouldn't he be making the decision????
Lori May 28, 2013 at 02:35 PM
Michael, Thank you. I drink alcohol in extreme moderation for a few reasons. Any type of abuse causes my heart to ache for the ones involved, especially the innocent. I don't have all the answers. I just know that in such cases, if the alcohol had not been involved those kids lives might have been spared. Very sad. I don't know the specialist. But I do know that you can't trust all doctors, specialist or not. Sometimes a persons intuition should outweigh the decision making. Obviously in this case the family agrees with the specialist. I do wish the best for the child most importantly!!!
Michael May 28, 2013 at 03:27 PM
Thank you Lori. You sould like a very caring person. Perhaps the kindness solution is to look at what will help the child first and formost. If you see her pictures in the Star-Ledge piece(click on link above) and see the entire article of all that they have tried, they have exhausted the medical traditional profile. The suffering needs to stop now for this precious child, and sometimes that means stepping back from our baggage and give them hope. THE cruelest thing ANYONE can ever do is take hope away. If this was my child, and we had done everything possible, then it is time to try the improbable with caution and prayer. Have a great week and be blessed it is something you and I will never experience first hand.
Michael May 28, 2013 at 09:21 PM
Great comment! And thank you for the heads up, I will check out the site and watch the program. It still comes back to when modern medicine fails, lets look at history. Cannabis has been used for more than 3000 years and today it's potential is yet untapped. Our focus here is to get relief for a child that her expert Neurologist said this could help after drug after drug that has not. Christie is stone walling the whole MMP because of his own agenda. THAT does NOT belong here now. IMHO.
John Dumas May 29, 2013 at 04:53 PM
Lori your approach sounds like faith healing. Suffering while waiting is NOT treatment.
Pmarleen May 31, 2013 at 04:47 PM
Hear, Hear!! I've been saying this for years.. sell it legally, tax it.. make some money for the state!!!
Mark Harn August 19, 2013 at 11:24 PM
There is a OTC product that is only CDB's. no THC. It can be shipped and sold to anyone. It is not a controlled substance without THC. I use it for pain and nausea while I am being treated. NO HIGH AT ALL. You feel good because you don't hurt. I tried smoking MMJ I live in Phoenix AZ a legal medical MJ state. This is the one I have used. I have no other experience with other oils. Most are just squeezed seeds for the oil. No CDB's I have no way to tell the Wilsons I do not have any contact info.
Mark Harn August 19, 2013 at 11:28 PM
Sorry, http://dixiebotanicals.com/ This works. I have sent a few inquires about the Wilson's to get contact info. If you know the Wilson's please get this to them. It has changed my quality of life. Seriously.


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